Long COVID
Mild → no benefit
Long COVID with bowel pain and dizziness; creatine gave a 5% boost, no overall improvement
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: Long COVID
long before covid or getting LC
In context ↗ - At worst: Mild
Helps me do my job for longer hours.
In context ↗ - Now: No benefit
I got a lot worse after getting a Flu and Tetanus shot
In context ↗ - Began after: COVID
long before covid or getting LC
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
An adult with long COVID who was still working, taking creatine for a roughly 5% energy boost that let them work longer hours. A strict low-FODMAP diet was the only thing that relieved their bowel pain and constipation, and an abdominal binder helped more than compression stockings. They had confirmed MCAS, developed vertigo with residual dizziness after an ER visit, and got a lot worse after flu and tetanus shots.
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What they tried
Also tried
Their words about each treatment
- Creatine · Helped
Creatine has helped me too, but don't expect more than like a 5 percent energy boost. ... I take 10g a day.
In context ↗ - Abdominal Binder · Helped
Abdominal Binder helped me way more than stockings ever did, just a little more uncomfortable.
In context ↗ - Stello · Not said
Brand name is Stello, warning I've had some issues with false readings because of poor placement
In context ↗ - Amitriptyline · Not said
I took Amitriptyline for a brief period long before covid or getting LC ... It would knock me out like a rock
In context ↗ - Meclizine · Helped
Meclizine helped a bit, it dampens signals from vestibular nerve. Only took it for about a week.
In context ↗ - Eply maneuver · No change
Eply maneuver wasn't really helpful at all.
In context ↗ - strict low fodmap diet · Helped
Strict low fodmap diet is the only thing that's improved my bowel pains and constipation.
In context ↗ - miralax · No change
None of the meds, miralax, and whathaveyous did anything.
In context ↗ - Flu vaccine · Worse
I got a lot worse after getting a Flu and Tetanus shot while at routine doctors appointment ... I had a bad reaction that was probably because of an MCAS reaction.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | long COVID, still workinglong before covid or getting LCIn context ↗ | Mild | |
| 2026-02-25 | creatine gave a small energy boostCreatine has helped me too, but don't expect more than like a 5 percent energy boost. Helps me do my job for longer hours.In context ↗ | Mild | Creatine |
| 2026-03 | first vertigo episode, ER visit and head CTI had vertigo for the first time a month ago and freaked out, went to the ER, and had a head ct with contrast doneIn context ↗ | Mild | |
| 2026-04-17 | low FODMAP diet relieved bowel pain and constipationStrict low fodmap diet is the only thing that's improved my bowel pains and constipation.In context ↗ | Mild | Low-FODMAP diet |
| 2026-09-06 | much worse after flu and tetanus shotsI got a lot worse after getting a Flu and Tetanus shot while at routine doctors appointmentIn context ↗ | Not stated |
Adverse events
- Amitriptyline (Elavil)“It would knock me out like a rock, almost like it was propofol.” In context ↗ Side effects
- Flu vaccine“I got a lot worse after getting a Flu and Tetanus shot while at routine doctors appointment ... I had a bad reaction that was probably because of an MCAS reaction.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I have confirmed MCAS
In context ↗ - Gut problems
Strict low fodmap diet is the only thing that's improved my bowel pains and constipation.
In context ↗ - POTS & dysautonomia
I'm still dealing with residual dizziness but it's not impeding my existence.
In context ↗