ME/CFS
Outcome unclear
ME/CFS with severe MCAS and reactions to nearly everything, no overall change
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
ME/CFS, MCAS, and vitamins
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Sandpiper 13179 reported ME/CFS, severe MCAS and low bone density, and said they react to nearly everything. Calcium citrate and powdered calcium carbonate were not tolerated, and a liquid vitamin D with olive oil caused migraines. They tolerated one Walgreens generic adult multivitamin. They said rehab was not helpful for their ME, and no overall change in their ME/CFS was described.
Ask Miruvor AI
What they tried
Also tried
calcium from coral· HelpedWalgreens brand generic adult multivitamin (green label)· Helpedrehab· No changecalcium citrate· Worsecalcium carbonate (pure powder)· Worseliquid vitamin D with olive oil· WorseLDN· Not said
Their words about each treatment
- calcium from coral · Helped
Many years ago I did okay with calcium from coral
In context ↗ - calcium citrate · Worse
I react badly to calcium citrate, as it is fermented.
In context ↗ - calcium carbonate (pure powder) · Worse
I reacted to pure powdered calcium carbonate
In context ↗ - liquid vitamin D with olive oil · Worse
a liquid vitamin D with just olive oil gave me migraines
In context ↗ - Walgreens brand generic adult multivitamin (green label) · Helped
I tolerate one of the Walgreens brand of generic adult multivitamins.
In context ↗ - rehab · No change
I personally don’t think rehab will be helpful for you given the severity of your ME. It wasn’t for me.
In context ↗ - LDN · Not said
No, the vivid dreams don’t go away. But I also take other medications that cause vivid dreams, so I don’t know which ones are causing them
In context ↗
Adverse events
- Calcium“I react badly to calcium citrate, as it is fermented.” In context ↗ Side effects
- Calcium“I reacted to pure powdered calcium carbonate” In context ↗ Side effects
- Vitamin D and sun exposure“a liquid vitamin D with just olive oil gave me migraines” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I have severe MCAS, am very reactive
In context ↗ - Headaches & migraine
a liquid vitamin D with just olive oil gave me migraines
In context ↗