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ME/CFS Outcome unclear

ME/CFS fatigue no better with B12 and vitamin D; skin and hair improved

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Feb 2025
In their words
  • Condition: ME/CFSi don’t see any difference in terms of fatigue In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on

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Summary

A Reddit user in the CFS community reported lifelong benzodiazepine use and that correcting low vitamin B12 and vitamin D (10,000 IU daily) improved their skin and hair but made no difference to their fatigue. They take 1 mg melatonin and half a doxylamine tablet as needed for sleeplessness. They described two abortions, one medical and one surgical, as excruciating, with the medical one the most painful experience of their life.

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What they tried

Their words about each treatment
  • benzos · Not saidi’ve taken benzos my entire life & i will never take them every day again for longer than 2 weeks max. In context ↗
  • melatonin · Helpedi take 1mg and it works perfectly In context ↗
  • b12 · No changemy b12 is optimal now. i don’t see any difference in terms of fatigue, but my skin and hair are better lol. In context ↗
  • vitamin D · No changei already take 10,000 IU a day. also no difference besides skin / hair In context ↗
  • doxylamine · Helpedtake a half tab of doxylamine (so 12.5mg). that does the trick for me In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsincreased panic, going totally mental from lack of sleep In context ↗

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