ME/CFS
Moderate → no benefitIll for 8 years
ME/CFS crashes, barely able to cross a room; no improvement with pacing or propranolol
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 8 years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I can't because that would make this worse, I would crash as exercise does that with what I have
In context ↗ - At worst: Moderate
I'm crashing and I can hardly walk across the room never mind anything else and the depression starts again
In context ↗ - Now: No benefit
I'm about 8 years in. When will I learn?
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Had ME/CFS for about eight years by mid-2022, with crashes after overexertion that left them barely able to walk across a room, and bouts of depression. They paced themselves, took propranolol, which they said might make them feel less tired, and lost 14lb in three months with loose calorie counting. By late 2025 they reported getting much more rest after a divorce and their child moving out.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- very loose calorie counting with Slimfast shakes · Helped
I've lost 14lb in the last 3 months by very loose calorie counting.
In context ↗ - propranolol · Helped
I might feel less tired after sleeping, lying down for a bit, eating or taking propranolol.
In context ↗ - pacing · Helped
I feel a bit better and find myself pacing well.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2014 | ME/CFS onsetI'm about 8 years in.In context ↗ | Not stated |
| 2022-07-15 | crash after doing more; could hardly walk across the roomBefore I know it, I'm crashing and I can hardly walk across the room never mind anything elseIn context ↗ | Severe |
| 2025-12-03 | more rest after divorce and child moving outI'm getting so much more rest now I'm divorced and had one kid grow up and move out.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can't because that would make this worse, I would crash as exercise does that with what I have.
In context ↗ - Anxiety & low mood
the depression starts again
In context ↗