Long COVID
Mild → somewhat betterIll 14 months before improving or writing
Long COVID with vertigo and dizziness, some improvement in hair and gums after vaccine
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 14 months
- Last post
- May 2021
In their words
- Condition: Long COVID
as I have read more about long haulers some of my symptoms seem to fit
In context ↗ - At worst: Mild
I have to stand all day (even working I have to use my standing desk) and once my feet get too tired I have to lay down
In context ↗ - Now: Somewhat better
some of my issues seem to be doing better. My hair did not fall out in clumps when I washed it, so I take that as an improvement. Also, my gums seem to be doing a bit better.
In context ↗ - Began after: COVID
I am pretty sure I got covid in March 2020
Summary
They fell ill with respiratory symptoms in February 2020, presumed COVID, and were left with constant vertigo that brought their pre-existing MdDS out of remission, headaches, light sensitivity, clumping hair loss, unrefreshing 10-12 hour sleep and dizziness on sitting. They kept working using a standing desk. After their first COVID vaccine shot in spring 2021 their hair and gums improved, but they still lived with constant dizziness.
Ask Miruvor AI
What they tried
Also tried
benzodiazepines· HelpedAleve· Helpeddriving in a car· Helpedfan blowing on her face· Helpedstanding desk· Helpedresting when tired· Helpedfirst shot of COVID vaccine· Helpedblue light glasses· No changediltiazem· Not said
Their words about each treatment
- diltiazem · Not said
I was on the diltiazem for a couple of years, but then when I was in remission I weaned off of it
In context ↗ - benzodiazepines · Helped
I really don't like being on them, but on days when I am feeling really bad I will take one just to get some relief
In context ↗ - Aleve · Helped
I have found that taking Alieve can help some. It does not make it disappear, but sometimes can take the edge off
In context ↗ - blue light glasses · No change
they did not see anything wrong and told me to try blue light glasses, but that did nothing for me at all
In context ↗ - driving in a car · Helped
The other best way to relieve symptoms is to taking a drive in a car, since a hallmark of MdDS is that all symptoms disappear in a car drive
In context ↗ - fan blowing on her face · Helped
Having a fan on me blowing on my face can help also
In context ↗ - standing desk · Helped
Standing is better than sitting. Since it has come back for me, I have pretty much transitioned to a standing desk while working and use that exclusively
In context ↗ - resting when tired · Helped
I try not to push my limits too much. When I start to feel tired, I go to sleep since I know if I try to stay up I will feel a lot worse the next day
In context ↗ - first shot of COVID vaccine · Helped
I recently got the first shot of my vaccine and some of my issues seem to be doing better. My hair did not fall out in clumps when I washed it, so I take that as an improvement. Also, my gums seem to be doing a bit better
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| February 2020 | fell ill with respiratory symptoms, presumed COVID; MdDS vertigo came back full forceLast February I got very ill with respiratory symptoms.In context ↗ | Mild | |
| April 2021 | first COVID vaccine shot; hair loss and gums improvingI recently got the first shot of my vaccine and some of my issues seem to be doing better.In context ↗ | Mild | COVID vaccination as treatment |
| May 2021 | still dizzy every day, working with a standing deskI have learned to live with being dizzy all the time.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Once I got sick, it came back full force. ... when I sit down I get extremely dizzy and light headed
In context ↗ - Headaches & migraine
Any kind of artificial light would seem to set off extreme headaches.
In context ↗ - Light & noise sensitivity
even the light from my monitor would set off horrible headaches and eye pain
In context ↗ - Hair loss
my hair started to fall out in clumps
In context ↗ - Sleep problems
I started sleeping 10 to 12 hours a night and was still exhausted when I woke up.
In context ↗