Miruvor
Sign up
ME/CFS Mild → no benefitIll for 3 years

Mild ME/CFS with crashes and PEM; vitamins and LDN brought no benefit

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Oct 2026
In their words
  • Condition: ME/CFSI have mild (diagnosed) ME/cfs, which was gradually onset I think in December 2023 In context ↗
  • At worst: MildI have mild (diagnosed) ME/cfs ... the last 2.5 years has been a cycle of about 5/6 weeks of Uni, then 1/2 weeks of crashing In context ↗
  • Now: No benefitIt's been getting slightly worse, but it's been more or less constant in fatigue levels. ... I think I've been sliding into moderate territory recently with my crashes.
  • Began after: nothing they could nameI have mild (diagnosed) ME/cfs, which was gradually onset I think in December 2023. In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on

Request to remove this story

Summary

Plover 40474 had mild, gradually onset ME/cfs from December 2023, diagnosed while at university, with clear PEM and a cycle of five to six weeks of study then one to two weeks of crashing. They started pacing in late 2026 after a three-week crash and got closer to their baseline, but their crashes, plus new poor sleep, bloating and nausea, left them worried about sliding into moderate ME. Neither standard vitamins nor a month of LDN helped.

Ask Miruvor AI

Asking aboutPlover 40474’s story

What they tried

Also tried

protein bars· Helpedpacing· Helpedstandard vitamins· No changeLDN· No changestrong melatonin· No changesleep therapist· No changepro-biotics· Not said
Their words about each treatment
  • protein bars · Helpedyeah i've been carrying protein bars around to eat with me, which helps In context ↗
  • standard vitamins · No changeI take a long list of the standard vitamins, which don't seem to do much. In context ↗
  • LDN · No changemy GP did prescribe LDN, but i tried it for a month (?) and noticed no differences In context ↗
  • pro-biotics · Not saidI already take pro-biotics and am very careful with diet. In context ↗
  • strong melatonin · No changeI've tried strong melatonin and it hasn't helped at all. In context ↗
  • sleep therapist · No changeI've gone to a sleep therapist who was like LOL can't help you. In context ↗
  • pacing · Helpedi've only been pacing for about a month, but i'm definitely getting a lot closer! In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2023gradual onset of ME/CFS while at universityI have mild (diagnosed) ME/cfs, which was gradually onset I think in December 2023. In context ↗Mild
2026-08-30bad crash that wiped them out, after cycles of 5/6 weeks of university then 1/2 weeks crashingI had a really bad crash a few days ago that has really wiped me out In context ↗Mild
2026-09-30came out of a 3 week crash and avoided bad PEM for a weekI finally made it out of a 3 week crash that I thought had become my new baseline In context ↗Mild
2026-10-19about a month of pacing, closer to baseline but increasing activity too much and new sleep and stomach problemsi've only been pacing for about a month, but i'm definitely getting a lot closer In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisei have very clear symptoms of PEM which made it very obvious for me In context ↗
  • Temperature regulationI overheat constantly as well In context ↗
  • Sleep problemsstruggling to get to sleep and stay asleep In context ↗
  • Gut problemsI have also been really bloated, which is unusual for me. I also get very nauseas after eating In context ↗
  • Anxiety & low moodI'm currently spiralling mentally a bit about having ME In context ↗

Ask Miruvor AI

Asking aboutPlover 40474’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime