Bedbound with long COVID for six months, now at university and tiring more easily
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: Long COVID
pre LC i’ve always been a sleepier person
In context ↗ - At worst: Severe
bedbound for 6 months in 2022, dark room, no lights, no sounds, minimal human contact, mostly moving to the toilet and back, sleeping 12 hours a day
In context ↗ - Now: Near normal
today i now am at uni full time, work casually, have a great social life and relationships. i tire easier than most
In context ↗ - Began after: COVID
pre LC i’ve always been a sleepier person (i have ADHD)
Summary
Summit 87072 was bedbound with long COVID for six months in 2022 in a dark room with no light or sound, sleeping 12 hours a day and unable to get out of bed most days. They were largely housebound until early 2023, then pushed through a retail job for financial reasons and acclimatised. By August 2024 they were at university full time with casual work and a good social life, tiring more easily than most.
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What they tried
What they credit
Their words about each treatment
- working retail again and pushing through · Helped
i pushed through (not recommended). i soon acclimatised to it, and was able to go to uni again on campus end of 2023
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | bedbound in a dark room for six monthsbedbound for 6 months in 2022, dark room, no lights, no sounds, minimal human contact, mostly moving to the toilet and back, sleeping 12 hours a day.In context ↗ | Severe |
| 2022-10 | some progress from the low pointsince this post i’ve made some progress and i’m trying to stay positiveIn context ↗ | Severe |
| early 2023 | mostly houseboundthen i was mostly housebound until early 2023.In context ↗ | Moderate |
| 2023 | pushed through a retail job and acclimatisedstarted working retail again (didn’t have much choice financially) and it was one of the hardest things i’ve ever done in my life, but i pushed through (not recommended). i soon acclimatised to itIn context ↗ | Mild |
| end of 2023 | returned to university on campuswas able to go to uni again on campus end of 2023In context ↗ | Mild |
| 2024-08-10 | university full time, casual work and a full social lifetoday i now am at uni full time, work casually, have a great social life and relationships. i tire easier than mostIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
my anxiety had been in remission and now i’m getting panic attacks almost daily. has also caused a depressive episode (i have bipolar).
In context ↗ - Sleep problems
sleeping 12 hours a day
In context ↗ - Light & noise sensitivity
dark room, no lights, no sounds
In context ↗
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