Long COVID fatigue, 95% housebound, much better after 5.5 months off sick
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Nov 2024
In their words
- Condition: Long COVID
So I got post viral fatigue following a covid infection.
In context ↗ - At worst: Moderate
It did get pretty bad by the end of the first year (I was 95% housebound apart from work by that point)
In context ↗ - Now: Much better
I've managed to stay mild and able to do things outside of work
In context ↗ - Began after: COVID
So I got post viral fatigue following a covid infection.
In context ↗
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
Developed post-viral fatigue after a COVID infection and was 95% housebound apart from work by the end of the first year. Taking 5.5 months off sick in early 2024 brought a reliable improvement, enough to leave the house and socialise. Returning to a four-day week in June slowly wore them down; by October they were backsliding, with fatigue worse and plans to cut to three days.
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What they tried
What they credit
Also tried
Their words about each treatment
- radical rest · Helped
Took 5.5 months off at the beginning of this year and recovery was okay!
In context ↗ - reduced working hours · Helped
I've managed to stay mild and able to do things outside of work only because I gave that ghost up after a year
In context ↗ - functional medicine doctor · No change
For me it didn't help much
In context ↗ - chronic fatigue clinic · No change
I had to admit to her I didn't think it was any help whatsoever
In context ↗ - healthy eating · Helped
by mourning and making it okay to just rest and focus on healthy eating, and not feel bad about that, I got more of my health back than I'd really expected.
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | post-viral fatigue after a COVID infectionSo I got post viral fatigue following a covid infection.In context ↗ | Mild | |
| end of the first year | 95% housebound apart from workIt did get pretty bad by the end of the first year (I was 95% housebound apart from work by that point)In context ↗ | Moderate | |
| first 5.5 months of 2024 | 5.5 months off sick; able to leave the house and socialiseI took the first 5.5 months of the year off sick to get to a point where I could leave my house and do social thingsIn context ↗ | Mild | Radical rest |
| October 2024 | backslide after a few months working 4 days a weekI'm experiencing a backslide now after a few months working 4 days a week.In context ↗ | Mild | |
| 2024-11-05 | fatigue worse again; planning to halve work hours and build back slowerthe fatigue has gotten worse again!In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I did get PEM, haven't had more than a little in a long time
In context ↗ - Anxiety & low mood
which is not helping my mood, making me feel more run down
In context ↗
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