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ME/CFS Mild → no benefitIll for 6 months

Almost daily exhaustion and dizziness with ME/CFS, still struggling at work

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
6 months
Last post
May 2023
In their words
  • Condition: ME/CFSMy doctor brought up CFS because all my vitals are good In context ↗
  • At worst: MildI’ve lost touch with friends and family and am struggling at work. Everyday feels like a battle. In context ↗
  • Now: No benefitafter supplements had raised my iron levels, I am still feeling horrible In context ↗
  • Began after: COVIDI had Covid a while ago and was back to normal for months before this happened.
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

Five to six months before May 2023 the user developed almost daily exhaustion despite sleep, faintness and dizziness that made sitting upright difficult and driving and restaurants impossible, and headaches after concentrating. Iron supplements raised low iron levels but the symptoms continued. Their doctor raised CFS, though they were unsure whether they had post-exertional malaise. They were still struggling at work and had lost touch with friends and family.

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What they tried

Their words about each treatment
  • supplements · No changewe had thought it was low iron at first but after supplements had raised my iron levels, I am still feeling horrible In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
~December 2022constant exhaustion, faintness and dizziness, headaches beganThe past ~5-6 months have been absolute hell. In context ↗Mild
2023-05-25still exhausted and dizzy, struggling at work, cannot drive or sit uprightEveryday feels like a battle. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI am exhausted almost everyday no matter how much sleep I get In context ↗
  • POTS & dysautonomiaI am very faint and dizzy all the time In context ↗
  • Headaches & migraineI get random headaches a lot throughout the day In context ↗

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