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ME/CFS Severe → no benefitIll for 19 months

ME/CFS, horrific fatigue and barely able to leave bed for six months, energy still depleted

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
19 months
Last post
Jun 2024
In their words
  • Condition: ME/CFSI also got ME/CFS after my 4th Covid vax sadly In context ↗
  • At worst: Severehad horrific fatigue instantaneously and could barely leave my bed for 6 months In context ↗
  • Now: No benefithowever my energy level has been evaporated ever since In context ↗
  • Began after: a vaccinationI also got ME/CFS after my 4th Covid vax sadly (Pf*zer fall 2022 batch)
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

After a fourth COVID vaccination in fall 2022 they developed ME/CFS, with horrific fatigue and barely able to leave bed for six months. Their energy stayed depleted since, and they planned life around managing fatigue alongside disabilities they had beforehand, spending money on it. They remained a vaccine supporter and intended to get the next variant dose.

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Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
fall 2022ME/CFS began right after 4th COVID vaccination; bedboundI also got ME/CFS after my 4th Covid vax sadly (Pf*zer fall 2022 batch)—had horrific fatigue instantaneously and could barely leave my bed for 6 months In context ↗Severe
2024-06-27out of bed but energy stayed depleted; life planned around fatiguemy energy level has been evaporated ever since In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknesshad horrific fatigue instantaneously and could barely leave my bed for 6 months In context ↗

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