ME/CFS
Outcome unclear
ME/CFS fatigue and shakiness after a mild illness, learning to pace
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- May 2025
In their words
- At worst: Mild
Today sitting outside was tiring so I came back inside to lay on the couch. But I know I need to get up and move around some so I'll get up and do some small things throughout the day.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They described fatigue and shakiness after a mild illness, with muscles burning for a day and shakiness lasting about a month; around then they felt oddly cold. Before getting sick they could do light woodworking, but then they tanked for a month. They wondered whether inflammation or autoimmunity was involved and were learning to pace, and sitting outside tired them so they lay on the couch. They were considering an immunologist and said bipolar medication hadn’t made a significant difference beyond helping depression.
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What they tried
Their words about each treatment
- pacing · Not said
I've been somewhat learning to pace myself ... Today sitting outside was tiring so I came back inside to lay on the couch.
In context ↗ - lamotrigine · Helped
Bipolar is lamotrigine and right now abilify, but this was before that and hasn't made a significant difference other than helping with the depression
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | got a mild infection and crashed for a monthgot sick (mildly sick...) and suddenly completely tanked for a monthIn context ↗ | Mild |
| 2025 | a month of shakiness, burning muscles and feeling coldthen it took a month to stop with the shakinessIn context ↗ | Mild |
| 2025-05-24 | learning to pace, resting on the couch when tiredToday sitting outside was tiring so I came back inside to lay on the couch.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
when the muscle shakiness kicked off it was fatigue and shaky
In context ↗ - Temperature regulation
Was also feeling weirdly cold around that time
In context ↗ - Anxiety & low mood
hasn't made a significant difference other than helping with the depression
In context ↗