15 years of ME/CFS fatigue, somewhat better after long rest in a positive or neutral place
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 15 years
- Last post
- Sep 2021
In their words
- Condition: ME/CFS
I am in the same situation, all this has been going on for 15 years, NO ONE believes me.
In context ↗ - At worst: Mild
not endure the stress of having to drag myself to university, to work
In context ↗ - Now: Somewhat better
The only thing that has ever helped me is actually a long rest in positive or at least neutral environment
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Alpine 36163 reported that fatigue and related difficulties had been ongoing for 15 years, with no one believing them. They described still having to drag themselves to university and work, and said the only thing that had ever helped was a long rest in a positive or at least neutral environment. They were trying to normalize nutrition and sleep and add positive events, while finding it hard to rest for long without stress.
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What they tried
What they credit
Also tried
Their words about each treatment
- normalizing nutrition and sleep · Not said
I'm trying to help myself - by normalizing nutrition and sleep
In context ↗ - adding positive events to life · Not said
adding at least some positive events to my life
In context ↗ - long rest in positive or at least neutral environment · Helped
The only thing that has ever helped me is actually a long rest in positive or at least neutral environment
In context ↗
Approaches: Radical rest
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 15 years before 2021-09-18 | illness began; ongoing for 15 yearsall this has been going on for 15 yearsIn context ↗ | Not stated |
| 2021-09-18 | still struggling at university/work; long rest is the only helpdrag myself to university, to workIn context ↗ | Mild |
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