ME/CFS
Outcome unclear
Moderate ME/CFS; Re-Origin very bad, Restore not hugely helpful
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2025
In their words
- Condition: ME/CFS
experiencing pem
In context ↗ - At worst: Moderate
in my case (moderate)
In context ↗
Summary
Petrel 96632 described their case as moderate and said they had not yet found a brain retraining program that helped. They tried Re-Origin and called it very bad. They tried Sarah Jackson's Restore, did not benefit hugely, but considered it a good program compared with others. They warned that mental exhaustion from brain retraining can cause post-exertional malaise and crashes, especially in severe cases.
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What they tried
Their words about each treatment
- Re-Origin · Not said
I found Re-Origin very very bad. ... Re-Origin felt so fake
In context ↗ - Restore (Sarah Jackson) · Helped
I did not benefit hugely, but it's a very good programm compared to others I've tried so far.
In context ↗
Adverse events
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)“the false belief that the symptoms are "not dangerous", but when your body signals to stop, you better stop when you are experiencing pem, otherwise you crash and get worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when you are experiencing pem, otherwise you crash and get worse
In context ↗