ME/CFS
Moderate → no benefit
Years of exhaustion and broken sleep with ME/CFS, still no improvement from treatments
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- a good few years
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
alwasys tired but bloodwork is fine
In context ↗ - At worst: Moderate
I had to drop out of uni and leave my part time job because of how i constantly felt tired and needed to nap.
In context ↗ - Now: No benefit
i haven't had any increase in energy either
In context ↗ - Began after: nothing they could name
I have been feeling like this for a good few years.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 23-year-old woman in the UK had felt exhausted for a good few years, with broken, unrefreshing sleep, and had dropped out of university and left her part-time job. Blood tests for iron, thyroid, diabetes, PCOS and vitamin D were normal. Amitriptyline and promethazine made her feel worse, magnesium did nothing, and six months of fluoxetine 40 mg had not increased her energy. She had cut down on carbs and sugar without benefit, and felt she was wasting her years in bed when she posted.
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What they tried
Also tried
Their words about each treatment
- exercising · No change
Its been 2 years since ive starting getting into exercising and even then i feel tired.
In context ↗ - cutting down on carbs and sugar · No change
have cut down on carbs and sugar alot since jan 2022 in hopes to find a solution but to no avail
In context ↗ - fluoxetine · No change
I have been on fluoxetine 40mg for 6 months ... but i haven't had any increase in energy either
In context ↗ - amitriptyline · Worse
giving me sleeping tablets like amitriptyline or Promethazine but they only make me feel worse
In context ↗ - magnesium · No change
i've been trying magnesium which is failing as well
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | Constant exhaustion began, needing napsI have been feeling like this for a good few years.In context ↗ | Moderate |
| 2022-10-17 | Still exhausted after treatments failed; out of uni and workI am sick of being tired and am wasting my years in bed.In context ↗ | Moderate |
Adverse events
- Amitriptyline (Elavil), Promethazine (Phenergan)“they keep dismissing me by giving me sleeping tablets like amitriptyline or Promethazine but they only make me feel worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Sleep problems
i sleep enough hours but its very disturbed, i often wake up in the middle of the night
In context ↗