Miruvor
Sign up
Long COVID Outcome unclear

Long COVID with POTS for over ten years; still tired, Corlanor only thing that worked

Condition
Long COVID
At worst
Not stated
Ill for
Not stated
Last post
Apr 2025
In their words
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

A person who has had POTS for over ten years. Ketamine infusions, which they said were not worth $5,000, eased their depression and mindset but left them feeling just as sick physically, and at-home treatments gave no comparable relief. By April 2025 they said off-label Corlanor was the only thing that had worked for their POTS, though they were still tired in a different way.

Ask Miruvor AI

Asking aboutAlder 48706’s story

What they tried

Also tried

Corlanor· HelpedKetamine treatments· Helpedat home treatments· No change
Their words about each treatment
  • Corlanor · HelpedCorlanor- it’s the only thing that has worked for me 10 plus years of POTS. Off label use. In context ↗
  • Ketamine treatments · HelpedKetamine treatments have helped with the depression and mindset moving forward. ... I still feel just as sick In context ↗
  • at home treatments · No changeI did not get the same effect from any of the at home treatments I have tried. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—POTS began, more than ten years before 202510 plus years of POTS In context ↗
2025-01-02Ketamine infusions eased depression but not the physical illnessKetamine treatments have helped with the depression and mindset moving forward. Has it helped me physically at all? I still feel just as sick In context ↗Ketamine
2025-04-17Off-label Corlanor helped POTS; still tired but differentlyCorlanor- it’s the only thing that has worked for me 10 plus years of POTS. Off label use. In context ↗Ivabradine

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomia10 plus years of POTS In context ↗
  • Anxiety & low moodKetamine treatments have helped with the depression and mindset moving forward. In context ↗

Ask Miruvor AI

Asking aboutAlder 48706’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime