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ME/CFS Outcome unclearNeeds ongoing treatment

ME/CFS tiredness, tried amitriptyline for sleep then Emgality for migraines

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2024
In their words
  • Condition: ME/CFSI usually notice it when I start to feel disinterested in everything. Then I can remind myself that I must just be too tired In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user in r/cfs described tiredness, which they distinguish from depression. They took amitriptyline from high school for headaches and sleep, never above 50 mg, and it stopped helping sleep. After a migraine diagnosis about 20 years later they improved greatly on Emgality and rizatriptan, but cutting amitriptyline brought migraines back. They also treated long-standing dandruff with co-washing and tea tree oil.

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What they tried

Their words about each treatment
  • tea tree oil · HelpedI started cowashing my hair and using tea tree oil. The dandruff vanished. In context ↗
  • cowashing and mild shampoo · HelpedBeing gentler with my hair and scalp is what finally kept it under control. In context ↗
  • Emgality · Helped a lotgot Emgality and rizatriptan. Incredible difference! In context ↗
  • Amitriptyline (Elavil) · Not saidCouldn't go higher than 50 mg because anything else made me sleep half the day, and groggy for the rest. In context ↗

Adverse events

  • “the more I treated the fungus with medicated shampoos, the more it over-dried my scalp, which resulted in excess oil production.” In context ↗ Side effects
  • Amitriptyline (Elavil)“Couldn't go higher than 50 mg because anything else made me sleep half the day, and groggy for the rest.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineI finally got diagnosed with migraines In context ↗
  • Sleep problemsI started it in high school for headaches and sleeping ... it stopped helping me sleep In context ↗

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