Condition not stated
Mild → no benefitIll for 9 months
Months of constant fatigue, exhausted all day, no better with self-care or medication
- Condition
- Condition not stated
- At worst
- Mild (working or studying, with limits)
- Ill for
- 9 months
- Last post
- Mar 2024
In their words
- Condition: Condition not stated
Do y'all think this could be CFS?
In context ↗ - At worst: Mild
I began sleeping in the afternoon to make up for exhaustion and stimuli, but never fully got rid of the exhaustion during the day
In context ↗ - Now: No benefit
I've tried self-care techniques, medications, reducing workload, and more to help reduce symptoms as recommended by the doctor, but nothing's helped.
In context ↗ - Began after: stress or burnout
could've been caused by a 3-week summer counselor training where I had no breaks of rest from stimuli due to working with kiddos
- Says they never had: Muscle weakness
I haven't had much muscle weakness
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Lukia, a 17-year-old high school student, had 8-9 months of constant fatigue that possibly began after a three-week summer counsellor training with tonsillitis, a camp cold and no rest, and worsened recently so that even 12+ hours of sleep did not help. They were still attending school but exhausted all day and close to passing out. Self-care, medications and a reduced workload had not helped.
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What they tried
Also tried
prescribed medications to help concentration and limiting anxiety· No changeself-care techniques· No changereducing workload· No change
Their words about each treatment
- prescribed medications to help concentration and limiting anxiety · No change
after beginning prescribed medications to help concentration and limiting anxiety ... I've tried self-care techniques, medications, reducing workload, and more to help reduce symptoms ... but nothing's helped
In context ↗ - self-care techniques · No change
I've tried self-care techniques ... but nothing's helped
In context ↗ - reducing workload · No change
I've tried self-care techniques, medications, reducing workload, and more to help reduce symptoms as recommended by the doctor, but nothing's helped
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| summer 2023 | Constant fatigue began after a three-week summer counsellor training with no restI've had a ton of fatigue over the past 8-9 monthsIn context ↗ | Mild |
| 2024-03-31 | Fatigue worsened; 12+ hours of sleep no longer helped, close to passing out by dayrecently its gotten worse with excessive sleep not helping at allIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
sleeping in the afternoon to make up for exhaustion and stimuli, but never fully got rid of the exhaustion during the day, even after 12hrs+ of sleep daily
In context ↗ - Post-exertional malaise
causing a ton of time I needed to take off from working afterward, sounding very similar to what I hear about during PEM
In context ↗ - Anxiety & low mood
anxiety, ADHD, OCD, depression, etc..
In context ↗ - POTS & dysautonomia
I'm in a constant state of potentially passing out any time during the day
In context ↗ - Light & noise sensitivity
increased vulnerability to external stimuli
In context ↗