ME/CFS
Severe → no benefit
Largely bedbound with ME/CFS, using mobility aids and body wipes
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I am no help on the diagnosis front, as I’m working towards that myself.
In context ↗ - At worst: Severe
I am largely bed bound, but the only reason I have a life at all is because of these mobility aids.
In context ↗ - Now: No benefit
I am largely bed bound
In context ↗
Summary
Hill 62594 wrote in an ME/CFS forum that they were largely bed bound while working towards a diagnosis, and that their mobility aids were the only reason they had a life at all. They bought a manual wheelchair for $25 and a power chair for $500, which they said made a real difference to getting out. On days they could not bathe they used body wipes and disposable toothbrushes.
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What they tried
Also tried
Wheelchair (manual and power chair)· Helped
Their words about each treatment
- Wheelchair (manual and power chair) · Helped
It has made such a difference in my ability to go out and be in the world. I am largely bed bound, but the only reason I have a life at all is because of these mobility aids.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | illness onset, timing and circumstances not describedI'm working towards that myselfIn context ↗ | Not stated |
| 2026-04-08 | largely bed bound, gets out only with mobility aidsI am largely bed bound, but the only reason I have a life at all is because of these mobility aids.In context ↗ | Severe |
| 2026-06-24 | still unable to bathe on some days, managing with wipes and disposable toothbrushesI use body/athletic wipes for days I am unable to bathe.In context ↗ | Severe |