Bedbound with long COVID, now somewhat better with diet and supplements
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Apr 2022
In their words
- Condition: Long COVID
I’m a vaccine long hauler and it’ll be a year since my vaccine
In context ↗ - At worst: Severe
I’m basically bedbound now and I wasn’t this way at all during my vaccine long haul
In context ↗ - Now: Somewhat better
I feel better. But it’s honestly only for symptom management
In context ↗ - Began after: a vaccination
I’m a vaccine long hauler and it’ll be a year since my vaccine.
- Says they never had: Heart symptoms & palpitations
I don’t have a chest pain
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Dusk 67448 developed long COVID after a COVID vaccination in 2021; during that vaccine long haul they could still push themselves, and dizziness wasn't a symptom. They recovered after about ten months, relapsed a few weeks after an Omicron infection in January 2022, got better again, then in late March/April was hit with GI issues, histamine dumps causing anxiety, bad fatigue, head pressure and dizziness, and was basically bedbound. A diet of vegetables and rice, supplements, vitamins and tea left them feeling better, though only for symptom management.
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What they tried
Also tried
Their words about each treatment
- Pepcid · Worse
Pepcid gave me an anxiety attack for some reason.
In context ↗ - one · Worse
Took one years ago and pretty sure it gave me serotonin syndrome, but I had a bad reaction upon taking it.
In context ↗ - it · Helped
Without it I have very painful and heavy periods with clotting and mood swings and hormones are all over the place.
In context ↗ - beet juice · Worse
I got beet juice to try and help with some inflammation. My face is flushing and I feel warm and just just kinda weird in general.
In context ↗ - eating vegetables and rice and just better food · Helped
I've been eating vegetables and rice and just better food in general now ... I feel better.
In context ↗ - supplements and vitamins · Helped
I take the supplements and vitamins I need ... and I feel better.
In context ↗ - tea · Helped
I drink tea and I feel better
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | Vaccine long haul beganI’m a vaccine long hauler ... I could still push myself and do thingsIn context ↗ | Mild |
| January 2022 | Relapsed after Omicron infectionOmi just made everything worse and dizziness wasn’t even a symptom for meIn context ↗ | Not stated |
| early 2022 | Back to baseline and felt normal for two monthsI got back to baseline and was feeling normal for 2 monthsIn context ↗ | Near normal |
| 2022-04-02 | Crashed with GI issues, histamine dumps, fatigue and head pressureI’m basically bedbound now and I wasn’t this way at all during my vaccine long haulIn context ↗ | Severe |
| 2022-04-27 | Feels better with vegetables, rice, supplements, vitamins and teaI’ve been eating vegetables and rice and just better food in general now ... I feel betterIn context ↗ | Moderate |
Adverse events
- Famotidine (Pepcid)“Pepcid gave me an anxiety attack for some reason.” In context ↗ Mood or psychiatric effects
- “Took one years ago and pretty sure it gave me serotonin syndrome, but I had a bad reaction upon taking it.” In context ↗ Side effects
- Nitric-oxide boosters (beetroot, arginine, citrulline)“My face is flushing and I feel warm and just just kinda weird in general.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I instantly got hit with GI issues
In context ↗ - Anxiety & low mood
histamine dumps causing anxiety
In context ↗ - Mast cell (MCAS) & allergies
My face is flushing and I feel warm
In context ↗ - Headaches & migraine
today I have really bad head pressure and head inflammation
In context ↗ - POTS & dysautonomia
head inflammation causing dizziness
In context ↗