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Long COVID Severe → somewhat betterIll 1 year before improving or writing

Bedbound with long COVID, now somewhat better with diet and supplements

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Apr 2022
In their words
  • Condition: Long COVIDI’m a vaccine long hauler and it’ll be a year since my vaccine In context ↗
  • At worst: SevereI’m basically bedbound now and I wasn’t this way at all during my vaccine long haul In context ↗
  • Now: Somewhat betterI feel better. But it’s honestly only for symptom management In context ↗
  • Began after: a vaccinationI’m a vaccine long hauler and it’ll be a year since my vaccine.
  • Says they never had: Heart symptoms & palpitationsI don’t have a chest pain
Read from 8 of their posts and comments; links to the 6 this page draws on

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Summary

Dusk 67448 developed long COVID after a COVID vaccination in 2021; during that vaccine long haul they could still push themselves, and dizziness wasn't a symptom. They recovered after about ten months, relapsed a few weeks after an Omicron infection in January 2022, got better again, then in late March/April was hit with GI issues, histamine dumps causing anxiety, bad fatigue, head pressure and dizziness, and was basically bedbound. A diet of vegetables and rice, supplements, vitamins and tea left them feeling better, though only for symptom management.

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What they tried

Also tried

it· Helpedeating vegetables and rice and just better food· Helpedsupplements and vitamins· Helpedtea· HelpedPepcid· Worseone· Worsebeet juice· Worse
Their words about each treatment
  • Pepcid · WorsePepcid gave me an anxiety attack for some reason. In context ↗
  • one · WorseTook one years ago and pretty sure it gave me serotonin syndrome, but I had a bad reaction upon taking it. In context ↗
  • it · HelpedWithout it I have very painful and heavy periods with clotting and mood swings and hormones are all over the place. In context ↗
  • beet juice · WorseI got beet juice to try and help with some inflammation. My face is flushing and I feel warm and just just kinda weird in general. In context ↗
  • eating vegetables and rice and just better food · HelpedI've been eating vegetables and rice and just better food in general now ... I feel better. In context ↗
  • supplements and vitamins · HelpedI take the supplements and vitamins I need ... and I feel better. In context ↗
  • tea · HelpedI drink tea and I feel better In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2021Vaccine long haul beganI’m a vaccine long hauler ... I could still push myself and do things In context ↗Mild
January 2022Relapsed after Omicron infectionOmi just made everything worse and dizziness wasn’t even a symptom for me In context ↗Not stated
early 2022Back to baseline and felt normal for two monthsI got back to baseline and was feeling normal for 2 months In context ↗Near normal
2022-04-02Crashed with GI issues, histamine dumps, fatigue and head pressureI’m basically bedbound now and I wasn’t this way at all during my vaccine long haul In context ↗Severe
2022-04-27Feels better with vegetables, rice, supplements, vitamins and teaI’ve been eating vegetables and rice and just better food in general now ... I feel better In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Gut problemsI instantly got hit with GI issues In context ↗
  • Anxiety & low moodhistamine dumps causing anxiety In context ↗
  • Mast cell (MCAS) & allergiesMy face is flushing and I feel warm In context ↗
  • Headaches & migrainetoday I have really bad head pressure and head inflammation In context ↗
  • POTS & dysautonomiahead inflammation causing dizziness In context ↗

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