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ME/CFS No benefit

ME/CFS relapse after medication, still not out of it

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Mar 2024
In their words
  • Condition: ME/CFSit makes my ME way worse In context ↗
  • Now: No benefitMeds made me relapse so hard in 2020 and I'm not out of it. In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

Moon 53563 reports having ME and describes medication as something they cannot take. They say meds made them relapse hard in 2020 and that they were still not out of it by February 2024. They called taking meds unsustainable, and later said medication makes their ME way worse.

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What they tried

Also tried

Their words about each treatment
  • meds · Much worseMeds made me relapse so hard in 2020 and I'm not out of it. ... I can't take it because it makes my ME way worse

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2020hard relapse after stimulant medicationMeds made me relapse so hard in 2020 and I'm not out of it. In context ↗Stimulants (unspecified)
2024-03-21still in the relapse; cannot take stimulantsI can't take it because it makes my ME way worse In context ↗

Adverse events

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