ME/CFS after mono/EBV, now nearly back to normal
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 8 months
- Last post
- Apr 2021
In their words
- Condition: ME/CFS
The first 6-8 months fit the pathology of CFS perfectly
In context ↗ - Now: Near normal
At this point I am about 80-90% or so recovered or so but that missing 10-20% is really bothering me.
In context ↗ - Began after: glandular fever or EBV
a bad bout of mono contracted a more than a year ago
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Cardinal 94860 became ill after a bad bout of mono/EBV more than a year before posting, and the first six to eight months fitted CFS. They then improved at a glacial pace, reaching about 80-90% recovered by April 2021. On the last day of a five-day course of turkey tail mushrooms, after a short run, they had what felt like a brief EBV reactivation with hours of chills and fatigue, though they were fine the next day.
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What they tried
Also tried
Their words about each treatment
- Turkey Tail mushrooms · Helped
Started a course of Turkey Tail mushrooms that lasted about a 5 days; initially I was feeling a lot better
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about a year before April 2021 | bad bout of mono (EBV)a bad bout of mono contracted a more than a year agoIn context ↗ | Not stated |
| first 6-8 months after mono | glacial, almost unnoticeable improvementThe first 6-8 months fit the pathology of CFS perfectly, except for that it did improve at an almost unnoticeable, glacial paceIn context ↗ | Not stated |
| late April 2021 | felt like a full EBV reactivation after a short run while taking turkey tailon the last day I had what felt like my first full on EBV reactivation in a while (months)In context ↗ | Mild |
| April 2021 | about 80-90% recoveredAt this point I am about 80-90% or so recoveredIn context ↗ | Near normal |
Adverse events
- AHCC and medicinal mushrooms (reishi, shiitake, maitake)“on the last day I had what felt like my first full on EBV reactivation in a while (months).” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
used to happen all the time for the first couple months or so of recovery when I'd push myself too hard after mono
In context ↗ - Temperature regulation
Chills that lasted several hours
In context ↗ - Anxiety & low mood
This whole thing has really got me back in that space of fearing I'll never fully regain my old self again
In context ↗