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ME/CFS Somewhat betterIll 3 months before improving or writing

Months of ME/CFS-like exhaustion, somewhat better after calming self-talk

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
3 months
Last post
Feb 2017
In their words
  • Now: Somewhat betterif I manage to successfully calm myself down and to tell myself that it's all in my head, I myself literally feel much better and most, if not all, of my symptoms actually go away In context ↗
  • Began after: nothing they could nameover the last couple of months, I've had symptoms which, at various points in time, mimicked chronic fatigue syndrome
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Creek 17125 posted in r/cfs in early 2017 about a couple of months of symptoms that mimicked chronic fatigue syndrome and POTS, with general exhaustion. A cardiologist concluded they did not have POTS and an MRI was normal. Calming themselves and telling themselves it was 'all in my head' made most symptoms go away, and they questioned whether the dysautonomia was psychosomatic. Advil brought a blood-pressure and head-pressure spike.

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What they tried

Also tried

Their words about each treatment
  • Advil · WorseI took Advil one hour ago to relieve head pain and ended up getting extremely massive blood pressure as well as even more extreme pressure in my head afterwards In context ↗
  • calming myself down and telling myself that it's all in my head · Helped a lotif I manage to successfully calm myself down and to tell myself that it's all in my head, I myself literally feel much better and most, if not all, of my symptoms actually go away In context ↗

Approaches: Brain retraining

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
over the couple of months before Feb 2017symptoms mimicking CFS and POTS beganover the last couple of months, I've had symptoms which, at various points in time, mimicked chronic fatigue syndrome, POTS syndrome, general exhaustion In context ↗Not stated
2017-01-30head pain; Advil caused blood pressure and head pressure spikeI took Advil one hour ago to relieve head pain and ended up getting extremely massive blood pressure as well as even more extreme pressure in my head afterwards. In context ↗Not stated
2017-02-26calming themselves made most symptoms go away; POTS ruled out, MRI normalif I manage to successfully calm myself down and to tell myself that it's all in my head, I myself literally feel much better and most, if not all, of my symptoms actually go away In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiamimicked chronic fatigue syndrome, POTS syndrome, general exhaustion In context ↗
  • Headaches & migraineI took Advil one hour ago to relieve head pain In context ↗

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