ME/CFS
Mild → no benefit
ME/CFS: daily walking made them feel worse; omeprazole eased only a stomach symptom
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Sep 2022
In their words
- Condition: ME/CFS
My CFS doc thinks I'm deconditioned
In context ↗ - At worst: Mild
I've had to stop doing other things around the house to manage
In context ↗ - Now: No benefit
I've been trying but I feel worse than ever
In context ↗
Summary
Valley 59612, in the UK, had CFS and was told by a CFS doctor that deconditioning was the problem; daily walking made them feel worse than ever and they had to cut back on other things around the house, so they planned to find a new doctor. A symptom they'd had for three or four years, with a throat-closing sensation, was stomach related, and omeprazole plus avoiding fatty and acidic food mostly calmed it. No overall change in the CFS was described.
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What they tried
Also tried
Their words about each treatment
- walking every day and slowly building up · Worse
I've been trying but I feel worse than ever, I've had to stop doing other things around the house to manage
In context ↗ - omeprazole · Helped
I started taking omeprazole and avoiding fatty and acidic food and it's mostly calmed down now
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021-10-29 | daily walking made them worse; cut back on houseworkI've been trying but I feel worse than ever, I've had to stop doing other things around the house to manage.In context ↗ | Mild | Graded rehab and self-made programmes |
| 2022-09-18 | long-standing throat and stomach symptoms mostly calmedI started taking omeprazole and avoiding fatty and acidic food and it's mostly calmed down nowIn context ↗ | Mild |
Adverse events
- Graded rehab and self-made programmes“I've been trying but I feel worse than ever, I've had to stop doing other things around the house to manage.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I've been trying but I feel worse than ever
In context ↗ - Gut problems
It was stomach related for me ... it's mostly calmed down now
In context ↗