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ME/CFS Somewhat betterIll 5 years before improving or writing

Exhausted and light-headed with ME/CFS, somewhat better with Wellbutrin and DBT

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
5 years
Last post
Jun 2024
In their words
  • Condition: ME/CFSI struggle with a lot of anger not only due to being exhausted all the time In context ↗
  • Now: Somewhat betterit's really helped me get a routine going and even want to try some gentle exercise and walking to get moving a bit. I still get light headed and tired of course In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

They described feeling exhausted all the time and light-headed, and said their older parents do a lot for them, with shame still there almost five years on. They took Cipralex for depression and anxiety and added Wellbutrin XL at 150 mg for two months, but the energy boost faded. After increasing to 300 mg they reported a better routine and interest in gentle walking, though they still felt light-headed and tired. They also said DBT skills changed their life.

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What they tried

Their words about each treatment
  • Therapy · HelpedTherapy helps me a lot. In context ↗
  • DBT skills · HelpedDBT skills for emotion regulation, they have changed my life In context ↗
  • Wellbutrin XL · Helpedthe energy it gave me was great but it petered out ... it's really helped me get a routine going In context ↗
  • Cipralex (Lexapro in US) · Not saidthe Cipralex (Lexapro in US) I was taking for depression/anxiety In context ↗

Approaches: Other antidepressants

Their path

Very severeSevereModerateMildNear normalRecovered5.2 y5.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5.1 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2018onset of chronic fatigue symptomsIt's been almost five years and I still feel it. In context ↗Not stated
2023-11-18exhausted all the time, anger, relying on parentsI struggle with a lot of anger not only due to being exhausted all the time ... They do so much for me, I feel so helpless.Moderate
2024-03Wellbutrin XL 150 mg gave great energyWe started at 150mg for 2 months, the energy it gave me was great In context ↗Mild
2024-05energy boost from Wellbutrin fadedthe energy it gave me was great but it petered out In context ↗Moderate
2024-06-06increased Wellbutrin to 300 mg; better routine, still light-headed and tiredit's really helped me get a routine going and even want to try some gentle exercise and walking to get moving a bit. I still get light headed and tired of course In context ↗Mild

Symptoms mentioned

Their words about their symptoms

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