Bedbound for a while with ME/CFS, much better after years of IVIG
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I am not currently on treatment but struggle with chronic fatigue still
In context ↗ - At worst: Severe
I was bed bound after over exerting for a while
In context ↗ - Now: Much better
I made vast improvements with years of treatment of IVIG ... I have some good days some worse
Summary
The user was bedbound for a while after overexerting. They reported vast improvements from years of IVIG treatment, which was hard to get approved; they were denied despite an autoimmune diagnosis and had to appeal. By their latest comment they were no longer on treatment, still struggling with chronic fatigue and having some good days and some worse.
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What they tried
What they credit
Also tried
Their words about each treatment
- IVIG · Helped a lot
I made vast improvements with years of treatment of IVIG. I was bed bound after over exerting for a while but slowly made improvement.
In context ↗ - supplements · Not said
I’ve moved to a combination of supplements and scripts to get me through I have some good days some worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedbound after overexertionI was bed bound after over exerting for a while but slowly made improvement.In context ↗ | Severe | |
| 2024-12-01 | vast improvements over years of IVIGI made vast improvements with years of treatment of IVIG.In context ↗ | Not stated | IVIG / subcutaneous Ig |
| 2024-12-01 | off treatment, still struggling with chronic fatigueI am not currently on treatment but struggle with chronic fatigue still so I’ve moved to a combination of supplements and scripts to get me through I have some good days some worse.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I was bed bound after over exerting for a while
In context ↗
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