ME/CFS and largely limited, somewhat better with low-dose naltrexone
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
I also have ME/CFS
In context ↗ - At worst: Moderate
I do as much advocacy and community support work as I can from my home (let's be real- my bed
In context ↗ - Now: Somewhat better
waking up even sometimes not exhausted has ben a total game changer for me
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sandpiper 85529 has ME/CFS and describes doing advocacy and community support work from bed, with only the few spoons needed to survive each day. They recommend low-dose naltrexone, which takes a while and can leave people more tired at first, and call it a total game changer because they now sometimes wake up not exhausted. They were still largely limited at the time of writing.
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What they tried
What they credit
Their words about each treatment
- LDN · Helped a lot
I do highly recommend LDN! ... waking up even sometimes not exhausted has ben a total game changer for me
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | living with ME/CFSI also have ME/CFSIn context ↗ | Not stated | |
| 2026-01-29 | on LDN, sometimes waking not exhausted but still working from bed on few spoonswaking up even sometimes not exhausted has ben a total game changer for meIn context ↗ | Severe | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
waking up even sometimes not exhausted
In context ↗
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