ME/CFS
Outcome unclear
ME/CFS with severe vertigo; tried seated chores and planned rest
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Nov 2024
In their words
- Condition: ME/CFS
It sucks not being able to be as spritely as I'd like to be but being intentional about the time I do have and making the best of my down time helps.
In context ↗ - At worst: Mild
I get creative with my rolling chair. For example I'll mop the floor while seated lol
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Fox 75059 described using seated chores and planned rest to manage activity. They had a severe vertigo attack that required an ER visit and wheelchair, followed by two months of slow walking and eight months before their pace returned. They also mentioned tinnitus, and cold-water face immersion and vagus exercises helped them through anxious spells.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- seated tasks / intentional rest scheduling · Helped
being intentional about the time I do have and making the best of my down time helps
In context ↗ - supplement (unnamed) · Worse
For me, I had a bad reaction from taking it. Thus why I wanted to leave a warning
In context ↗ - Epley maneuver · Helped
it's helped me a couple times to relieve my spinny feeling
In context ↗ - vagus nerve exercises (face in cold water) · Helped
This has helped me through so many anxious spells.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2024-08-26 | severe vertigo attack, ER visit and wheelchairI had to go to the ER. I couldn't walk, they had to get me from the car in a wheelchairIn context ↗ |
| 8 months after vertigo attack | balance and walking returned to regular paceit took 8 months before I felt like I could walk straight at my regular paceIn context ↗ |
| 2024-11-17 | tinnitus persisted; cold-water face immersion helped anxious spellsThis has helped me through so many anxious spells.In context ↗ |
Adverse events
- “For me, I had a bad reaction from taking it.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I lost my sense of balance. For 2 months afterward I had to walk very slowly or I wouldn't be able to stay upright.
In context ↗ - Light & noise sensitivity
I couldn't open them because the light was nauseating.
In context ↗ - Gut problems
I threw up before I could sit back down.
In context ↗ - Tinnitus
it hasn't helped me with that yet
In context ↗ - Anxiety & low mood
This has helped me through so many anxious spells.
In context ↗