13 years of ME/CFS episodes, somewhat better with Xanax and muscle relaxers
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 13 years
- Last post
- May 2022
In their words
- Condition: ME/CFS
my fatigue caused me to not study as much as I would have liked
In context ↗ - At worst: Moderate
I basically slept the entire last semester and got a C- in 2 classes
In context ↗ - Now: Somewhat better
The last 3 years has been me learning to balance my fatigue and other physical stuff that I have with my day to day activities.
In context ↗
Summary
Dew 57507, a woman, described 13 years of episodes, some so bad doctors first thought they were seizures; Xanax and muscle relaxers helped stop them. A college semester spent sleeping through classes and getting C- in two classes she had to retake led her to take three years off, which she says was great for her mental and physical health. By May 2022 she was attempting her last three classes, still balancing fatigue and extreme anxiety.
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What they tried
What they credit
Also tried
Their words about each treatment
- xanax · Helped
the one thing that helps to stop them is xanax and muscle relaxers
In context ↗ - learning to balance my fatigue · Helped
The last 3 years has been me learning to balance my fatigue ... taking the break ... was great for my mental and physical health
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2007 | episodes beganI’ve been having these episodes for 13 years nowIn context ↗ | Not stated |
| 2019 | slept through a college semester, failed classesI basically slept the entire last semester and got a C- in 2 classesIn context ↗ | Moderate |
| 2019-2022 | took three years off collegetaking the break, while I was supposed to be only 1 year, was great for my mental and physical healthIn context ↗ | Mild |
| 2022-05-05 | attempting last three classes for her degreeI’m trying to take my last 3 classes for my degreeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I basically slept the entire last semester
In context ↗ - Anxiety & low mood
My anxiety is extreme
In context ↗
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