ME/CFS
Very severe → much better
Very severely affected by ME/CFS, now much better with medications and lifestyle changes
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
medically diagnosed with ME/CFS
In context ↗ - At worst: Very severe
I was immobile, couldn’t speak or tolerate any stimulation.
In context ↗ - Now: Much better
I am still mostly house bound and very fatigued ... now I can get myself out of bed and meditate outside
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS was very severely affected at diagnosis, immobile and unable to speak or tolerate stimulation; six months before writing they still could not speak or move or hold a conversation. They credited lifestyle changes, medications, mental health work and positive mindset, plus leaving negative online spaces, for improvement. They remained mostly housebound and very fatigued, not fully recovered, but could get out of bed, meditate outside and see friends.
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What they tried
Also tried
everything under the sun· Not saidmeditate· Not said
Their words about each treatment
- everything under the sun · Not said
I have tried everything under the sun
In context ↗ - meditate · Not said
now I can get myself out of bed and meditate outside
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 6 months before 2026-03-17 (at first diagnosis) | Medically diagnosed with ME/CFS; immobile, unable to speak or tolerate stimulationWhen I first got medically diagnosed with ME/CFS I was immobile, couldn’t speak or tolerate any stimulation.In context ↗ | Very severe |
| 2026-03-17 (now) | Still mostly housebound and very fatigued, but can get out of bed, meditate outside and see friendsI am still mostly house bound and very fatigued. ... now I can get myself out of bed and meditate outside and even have friends come and see meIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
couldn’t speak or tolerate any stimulation
In context ↗ - Muscle weakness
I couldn’t speak or move or participate in even a conversation
In context ↗ - Anxiety & low mood
I was so scared and confused and desperate.
In context ↗