Long COVID symptoms for over a year, somewhat better with a Mayo-guided approach
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 18 months
- Last post
- Jun 2021
In their words
- Condition: Long COVID
I have since experienced multiple and on-going 'long haul' symptoms
In context ↗ - Now: Somewhat better
I'm improved but still not back to normal.
In context ↗ - Began after: another virus
I had a viral infection in Dec. 2019 before Covid was widespread and before testing was available.
In context ↗
Summary
Fell ill after a viral infection in December 2019, never confirmed as Covid, with multiple ongoing long-haul symptoms for over a year. After many tests and specialist referrals, Mayo Clinic diagnosed post-viral syndrome by elimination. With guidance from Mayo, they were taking a multi-pronged approach including supplements, CBD, slow cardio increases, red light therapy, hyperbaric oxygen and NAD+ infusions; by June 2021 they had improved but were not back to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- supplements · Helped
a multi-pronged approach including supplements, full-spectrum CBD
In context ↗ - full-spectrum CBD · Helped
full-spectrum CBD
In context ↗ - cardio exercise · Helped
slow and steady increases in cardio exercise
In context ↗ - proper hydration · Helped
proper hydration
In context ↗ - PBM - photobiomodulation or red light therapy · Helped
I do feel that PBM - photobiomodulation or red light therapy -- has helped me with 2x per week sessions.
In context ↗ - HBOT · Helped
I've had 2 HBOT sessions so far. ... I believe HBOT does help but to what extent, I cannot say.
In context ↗ - NAD+ iv infusion treatments · Not said
just started NAD+ iv infusion treatments
In context ↗
Approaches: Hyperbaric & oxygen · POTS medication · Alternative therapies · Other drugs and medicines · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Dec. 2019 | viral infection; ongoing long-haul symptoms beganI had a viral infection in Dec. 2019 before Covid was widespread and before testing was available.In context ↗ | Mild | |
| 2021-06-29 | partial recovery after Mayo guidance; still not back to normalI'm improved but still not back to normal.In context ↗ | Mild | Red and near-infrared light therapy |
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