ME/CFS
Moderate → somewhat betterIll 3 years before improving or writing
Mild to moderate ME/CFS for about three years, energy somewhat better now
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
I've have mild to moderate CFS for about three years now.
In context ↗ - At worst: Moderate
if I do any exercise more demanding than some yoga or a short walk, I crash.
In context ↗ - Now: Somewhat better
My energy is better than it was a few years ago, but if I do any exercise more demanding than some yoga or a short walk, I crash.
In context ↗
Summary
After about three years of mild to moderate CFS, this Reddit user said their energy was better than a few years earlier, though any exercise beyond yoga or a short walk still caused a crash. About two months on Adderall XR brought more energy at first, then a gradual worsening of symptoms, and a day off the drug ended in 20 hours of sleep.
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What they tried
Their words about each treatment
- yoga · Not said
if I do any exercise more demanding than some yoga or a short walk, I crash
In context ↗ - Adderall XR · Helped
while I've been on the Adderall, I have had somewhat more energy, though I do still crash
In context ↗ - psychologist · Helped
He's not treating me for the CFS, but he listens and validates me when I talk about it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2019 | ME/CFS beganI've have mild to moderate CFS for about three years now.In context ↗ | Moderate |
| May 2022 | energy better than a few years earlier, but exercise still crashes themMy energy is better than it was a few years ago, but if I do any exercise more demanding than some yoga or a short walk, I crash.In context ↗ | Mild |
| June 2022 | more energy at first on Adderall XRIn the beginning, I felt like it was giving me my life back.In context ↗ | Mild |
| 2022-07-16 | gradual worsening on Adderall; slept 20 hours on a break from itIn the time that I have been on the Adderall, I have noticed a gradual worsening of symptoms.In context ↗ | Moderate |
Adverse events
- Amphetamine salts (Adderall)“I have noticed a gradual worsening of symptoms.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I do any exercise more demanding than some yoga or a short walk, I crash
In context ↗ - Light & noise sensitivity
without lying down in the dark for long periods of time
In context ↗ - Sleep problems
I slept for 20 hours
In context ↗