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ME/CFS Outcome unclear

Exertion-triggered ME/CFS headaches, dizziness, feverish still; humidifier, IV tried

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
May 2022
In their words
  • Condition: ME/CFSI feel like it's really hard not knowing if I have CFS In context ↗
  • At worst: MildI can go out for a few days before i start having problems like mouth sores dry nose, throat and feverish feeling In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

They were unsure whether they had ME/CFS, describing sinus pressure, headaches, dizziness, stomach upset and a feverish feeling that came a few days after exertion. Symptoms eased after they got a humidifier and while on a hospital sodium lactate IV drip, and they could still go out for several days before symptoms appeared. In their last posts the symptoms were still coming on after exertion.

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What they tried

Their words about each treatment
  • Aircon settings · HelpedI noticed a slight improvement after I fiddled around with the Aircon settings In context ↗
  • stopped mouth breathing · Helpedwhen I stopped mouth breathing it helped slightly In context ↗
  • humidifier · Helped a lotI got a humidifier and my symptoms went away In context ↗
  • drink lots of water (I added some rehydrating salt) · Helpedwhat helped for me was to drink lots of water (I added some rehydrating salt) In context ↗
  • Zyrtec (Cetirizine) · HelpedI have tried it Zyrtec (Cetirizine) and also Claritin (Loratadine) both of which gave me some relief In context ↗
  • IV drip · Helpedbeing put on IV drip in the hospital made me feel better In context ↗
  • ORS · WorseI've tried ors but it makes me nauseous and kinda upsets my stomach In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2022-05-14humidifier cleared the dryness symptomsI got a humidifier and my symptoms went away In context ↗Mild
2022-05-17symptoms still come on after exertion; hospital IV drip helpedafter exertion last night and the night before I had those symptoms but being put on IV drip in the hospital made me feel better In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI've been having what seem liked Pem crashes after exertion In context ↗
  • Headaches & migraineMy main concern is a pressure in my head kinda feel like sinus issues In context ↗
  • POTS & dysautonomiaalso headaches and dizziness or stomach issues In context ↗
  • Flu-like symptomsI can go out for a few days before i start having problems like mouth sores dry nose, throat and feverish feeling In context ↗

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