ME/CFS
Outcome unclear
ME/CFS night waking damaging rest; bedside commode and electrolyte mix tried
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
the walk to the bathroom was destroying whatever rest i had managed to get
In context ↗
Read from 3 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS who posted in 2026 about night-time waking that was badly damaging their rest. They got a bedside commode a couple of years earlier because the walk to the bathroom was undoing whatever sleep they managed. Before bed they drink an unflavoured electrolyte mix (Trioral) and said it halved their wakeups; half a packet an hour before bed was their starting point.
Ask Miruvor AI
What they tried
Also tried
bedside commode· Helpedelectrolyte mix (Trioral)· Helped
Their words about each treatment
- bedside commode · Helped
got a bedside commode a couple years ago and it changed the game for me. the walk to the bathroom was destroying whatever rest i had managed to get
In context ↗ - electrolyte mix (Trioral) · Helped
i drink an electrolyte mix before bed now and it cut my wakeups in half
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| a couple years ago | rest so fragile that walking to the bathroom undid it; got a bedside commodethe walk to the bathroom was destroying whatever rest i had managed to getIn context ↗ | Severe |
| 2026-07-14 | still waking at night, but an electrolyte drink before bed halved the wakeupsi drink an electrolyte mix before bed now and it cut my wakeups in halfIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
i drink an electrolyte mix before bed now and it cut my wakeups in half
In context ↗