ME/CFS
Severe → no benefitIll for 13 months
Largely bedbound and housebound with ME/CFS, coping with journaling and strategies
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 13 months
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
i went from mild enough to not notice i had ME to housebound
In context ↗ - At worst: Severe
i quickly went from mild to pretty much bedbound/housebound, with the exception of leaving for appointments
In context ↗ - Now: No benefit
i’m newly sick (a bit over a year since my initial infection) ... pretty much bedbound/housebound
In context ↗
Summary
They became ill after an initial infection and at first were mild enough not to notice they had ME/CFS. Over about a year they described pushing themselves constantly and repeatedly, sliding from mild to largely bedbound and housebound, leaving home only for appointments. They coped with gratitude journaling and new strategies, saying it kept suicidal thoughts at bay.
Ask Miruvor AI
What they tried
Their words about each treatment
- pushing myself constantly over and over · Much worse
i went from mild enough to not notice i had ME to housebound without getting sick again, purely from pushing myself constantly over and over
In context ↗ - gratitude journaling · Helped
i’ve already noticed that i look forward to writing down my accomplishments throughout the day, and find more things to be grateful/positive for throughout the day
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2025 | fell ill after an initial infectioni'm newly sick (a bit over a year since my initial infection) ... i went from mild enough to not notice i had ME | Mild |
| 2026 | declined to bedbound/housebound from constant pushingi quickly went from mild to pretty much bedbound/housebound, with the exception of leaving for appointmentsIn context ↗ | Severe |
| 2026-10-18 | still houseboundi went from mild enough to not notice i had ME to housebound without getting sick again, purely from pushing myself constantly over and overIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
to housebound without getting sick again, purely from pushing myself constantly over and over
In context ↗ - Anxiety & low mood
it’s hard but it’s the only thing keeping the SI at bay, otherwise it feel too hopeless
In context ↗