ME/CFS
Outcome unclear
Chronically ill with ME/CFS and using a mobility scooter; probiotic for gut problems
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
developed years after my initial onset of ME
In context ↗
Summary
They became chronically ill with ME a few years before the legal driving age where they lived, and used a mobility scooter as an alternative to walking. Years after onset they developed IBS-like and MCAS-like gut problems, and they avoided fermented and high-histamine foods that set them off. A probiotic helped their gut a lot, though one strain triggered PEM, and it was expensive to keep up.
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What they tried
Their words about each treatment
- probiotics · Helped
I was using probiotics for a while (one type triggered PEM but the one type without that strain was fine so idk) and it helped a lot
In context ↗ - process of elimination · Not said
I have just done a process of elimination (but also let myself have the cheese sometimes because it makes me happy) and gone from there.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | became chronically ill with ME before the legal driving ageI became chronically ill a few years before the legal driving age where I used to liveIn context ↗ | Moderate |
| 2021-03-21 | using a mobility scooter instead of walkingit’s a great alternative to walkingIn context ↗ | Moderate |
| 2026-09-15 | developed IBS-like and MCAS-like gut issues years after ME onsetdeveloped years after my initial onset of MEIn context ↗ | Moderate |
| 2026-09-15 | avoids foods they react to, including fermented and high-histamine foodsBest I can do is to eat whatever I don’t react to rather than follow any particular diet or nutrition listIn context ↗ | Moderate |
Adverse events
- Probiotics and fermented foods“one type triggered PEM but the one type without that strain was fine so idk” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
I also have a range of gut issues that are IBS like and MCAS like
In context ↗ - Mast cell (MCAS) & allergies
I can’t eat fermented foods because of histamines in them
In context ↗ - Post-exertional malaise
one type triggered PEM but the one type without that strain was fine
In context ↗