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ME/CFS Outcome unclear

ME/CFS with chronic right-sided migraines since teens, less frequent on topiramate

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Apr 2018
In their words
  • Condition: ME/CFSA million percent this. Worked for me for the past decade. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user in r/cfs wrote in 2018 that something had worked for them for the past decade. They also described chronic right-sided migraines since their teens, which greatly decreased in frequency and intensity after a neurologist put them on topiramate about a decade earlier. The posts say nothing about how severely the fatigue limits them, how long they have been ill or how they are doing now.

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What they tried

Their words about each treatment
  • methylphenidate · HelpedA million percent this. Worked for me for the past decade. In context ↗
  • topiramate · Helped a lotFinally saw a neuro in college a decade ago, he put me on topiramate. Frequency & intensity greatly decreased. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineChronic migraines, always on the right side towards backish of the head since I was a teen. In context ↗

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