ME/CFS
No benefitIll for 40 years
Very sick for years with ME/CFS, POTS and panic attacks, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 40 years
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
Anxiety depression bullying PTSD panic disorder from childhood ending massively sick with CFS pots etc.
In context ↗ - Now: No benefit
I spent more than 30 years non stop looking for a cause and a cure that never came.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Crest 71953 described being very sick for years with CFS, POTS, panic attacks, night terrors and constant stomach pain, without ever finding a physical cause after about 40 years of testing. Anxiety, depression and PTSD dated from childhood. Medication only made them worse, they said, while sugar, diet Coke and coffee helped them feel better and low-carb diets did nothing or made things worse. They avoided hospitals, and said a bad episode passed after some days at home.
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What they tried
Also tried
Coffee· HelpedCoke· HelpedSugar and diet Coke· Helpedpsychiatry, psychology· No changemedication· Worseketo or carbfree· Worse
Their words about each treatment
- psychiatry, psychology · No change
I tried psychiatry, psychology, spent a fortune for nothing.
In context ↗ - medication · Worse
All real medication i tried only made me worse.
In context ↗ - keto or carbfree · Worse
I tried many times to stop eating carbs and sugar but didn't notice any difference ... I wish keto or carbfree helped but all the opposite they make me feel worse.
- Coffee · Helped
Same about coffee. ... They truly help me to feel better.
In context ↗ - Coke · Helped
I drink 1 liter or 2 of coke per day as it helps me immensely with my stomach
In context ↗ - Sugar and diet Coke · Helped
For me sugar and diet Coke are my best allies, they make me feel really good in my stomach always hurting and in my mood and well being.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| childhood | anxiety, depression, panic and PTSD from childhood, then became massively sick with CFS and POTSAnxiety depression bullying PTSD panic disorder from childhood ending massively sick with CFS pots etc.In context ↗ |
| 2023-02-13 | chronically ill after decades, avoided hospitals and a bad episode passed at home after some daysI learnt the hard way to avoid hospitals, emergencies, doctors and accept death at home if it had to happen. At the end I got better after some days.In context ↗ |
Adverse events
- Keto and low-carb diets“I wish keto or carbfree helped but all the opposite they make me feel worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
Anxiety depression bullying PTSD panic disorder from childhood
In context ↗ - Gut problems
it helps me immensely with my stomach
In context ↗ - Sleep problems
I suffer panic attacks and night terrors while sleeping from childhood
In context ↗ - POTS & dysautonomia
ending massively sick with CFS pots etc.
In context ↗