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Long COVID Severe → no benefitIll for 3 years

Long COVID fatigue worsening over three years, in bed, no improvement while on stimulant

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
3 years
Last post
Sep 2024
In their words
  • Condition: Long COVIDLC since fall 2021 In context ↗
  • At worst: SevereI’ve found myself spending most of the day in bed able to do less and less. In context ↗
  • Now: No benefitMy fatigue and weakness and other LC symptoms have steadily worsened over the years In context ↗
  • Began after: COVIDLC since fall 2021 In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user with long COVID since fall 2021 described steadily worsening fatigue, weakness and other long COVID symptoms over about three years. By September 2024 they spent most of the day in bed, doing less and less, and could manage basics such as showering or making a sandwich only while taking a stimulant for ADHD. They wondered whether the stimulant was contributing to the worsening.

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What they tried

Their words about each treatment
  • adderall/ stimulant · HelpedWithout it, I’d be in bed all day but it feels like I’m borrowing “spoons” and paying interest for it later as well. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
fall 2021long COVID onsetLC since fall 2021 In context ↗Not stated
2024-09-11steady worsening, most of the day in bedI’ve found myself spending most of the day in bed able to do less and less In context ↗Severe

Adverse events

  • Amphetamine salts (Adderall)“it feels like I’m borrowing “spoons” and paying interest for it later as well ... Can’t help but think the stimulants could be contributing to a worsening ME/CFS presentation.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessthe physical fatigue and weakness In context ↗
  • Post-exertional malaiseit feels like I’m borrowing “spoons” and paying interest for it later as well In context ↗

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Asking aboutCrest 83265’s story

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