Largely bedbound with ME/CFS after stopping SSRIs, somewhat better after restarting
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 years
- Last post
- Sep 2022
In their words
- Condition: ME/CFS
Could be CF or the depression got worse over the course of 10 years
In context ↗ - At worst: Severe
then I am basically bound to my bed
In context ↗ - Now: Somewhat better
which is still being wayyy to long in bed, but at least have the ability to force me to stay awake for a certain time
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
They took SSRIs for about ten years for depression with low energy, then stopped and became largely bedbound, off the drugs for two to three months and unable to do anything. Restarting the SSRI let them do small things and force themselves awake for a while, though they were still in bed far too much. It also gave them visual snow and tinnitus, making reading hard; they wondered whether this was CFS or worsening depression.
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What they tried
What they credit
Their words about each treatment
- ssri · Helped
after I didnt take them any more, then I am basically bound to my bed
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedbound after stopping ten years of SSRIsafter I didnt take them any more, then I am basically bound to my bedIn context ↗ | Severe | |
| 2022-09-03 | restarted SSRI, could do small things and stay awakebut still better than just lying in bed. Now I can do at least small thingsIn context ↗ | Severe | Antidepressants (unspecified) |
| 2022-09-03 | still in bed much of the time but able to stay awakewhich is still being wayyy to long in bed, but at least have the ability to force me to stay awake for a certain timeIn context ↗ | Severe |
Adverse events
- Antidepressants (unspecified)“as bonus I got a visual snow syndrom and tinnitus from the ssri” In context ↗ Side effects
- Antidepressants (unspecified)“Visual snow is getting worse over the years, in stress situation with time pressure I can barely read” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Vision problems
I got a visual snow syndrom and tinnitus from the ssri
In context ↗ - Tinnitus
as bonus I got a visual snow syndrom and tinnitus from the ssri
In context ↗ - Anxiety & low mood
I took ssri like for 10years because of depression with lack of energy etc.
In context ↗
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