Long COVID
Moderate → no benefitNeeds ongoing treatment
Constant dysautonomia and fatigue with long COVID, no improvement
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I always have *some* level of POTS symptoms, but only consider it a flare when I have elevated HR
In context ↗ - At worst: Moderate
just scooching up into my back pillows when in bed will put my HR over 100 ... Currently, I am only doing exercises that allow for simultaneous back, neck and head FULL stability.
In context ↗ - Now: No benefit
I always have *some* level of POTS symptoms ... I always have *some* kind of fatigue
In context ↗
Summary
A person with long COVID and POTS described constant dysautonomia and fatigue, with flares lasting 4 to 48 hours and a heart rate over 100 when sitting up in bed. They tolerated only magnesium as a supplement, called LDN a no go, and were ambivalent about the Visible app after a month. Compression briefs helped somewhat on outings, and they had cut exercise to movements keeping the head and neck stable.
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What they tried
Also tried
Their words about each treatment
- magnesium · Not said
The only supplement I can tolerate is magnesium.
In context ↗ - LDN · Not said
LDN is a no go.
In context ↗ - Visible app · Not said
I'm almost a month into using the Visible app. So far, I'm ambivalent.
In context ↗ - Acceptance · Helped
Acceptance helps the most, so long as it's not confused with giving up.
In context ↗ - compression briefs underwear · Helped
I have some luck mitigating both tachycardia and PEM this when I have to go out by wearing compression briefs underwear.
In context ↗ - exercises that allow for simultaneous back, neck and head FULL stability · Not said
Currently, I am only doing exercises that allow for simultaneous back, neck and head FULL stability.
In context ↗ - histamine blockers · Not said
the histamine blockers--they're fine for me to talk about.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | onset of illnessI always have *some* level of POTS symptomsIn context ↗ | Not stated |
| 2025-07-22 | constant dysautonomia and fatigue with POTS and PEM flaresOn top of always having some dysautonomia AND fatigue simultaneously, I can also have simultaneous POTS and PEM flares.In context ↗ | Moderate |
Adverse events
- Low-dose naltrexone“LDN is a no go.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I always have *some* level of POTS symptoms
In context ↗ - Post-exertional malaise
don't consider it a flare until it's PEM
In context ↗ - Heart symptoms & palpitations
mitigating both tachycardia and PEM
In context ↗ - Sleep problems
I *have to* sleep, and when I do, I have surreal dreams and/or bad dreams
In context ↗