ME/CFS
No benefit
ME/CFS; coming off lisdexamphetamine left them too tired to keep eyes open, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
I was soooo tired
In context ↗ - Now: No benefit
I'm on second day without it, it's been terrible
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They said lisdexamphetamine helped them too, though it came with some side effects. Trying to come off the medication, the second day without it was terrible: they were so tired it was almost impossible to keep their eyes open, drank a lot of coffee and had an anxiety crisis from the caffeine.
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What they tried
Their words about each treatment
- lisdexamphetamine · Helped
It helped me too. But, I was trying to get off lisdexamphetamine
In context ↗ - coffee / caffeine · Worse
I took tons of coffee cups today ... caffeine makes me anxious, I had an anxiety crisis today
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | chronic fatigue, later treated with lisdexamphetamineIt helped me tooIn context ↗ | |
| — | lisdexamphetamine helped, with some side effectsIt helped me too ... besides some side effectsIn context ↗ | Lisdexamfetamine (Vyvanse, Elvanse) |
| 2025-11-06 | second day off lisdexamphetamine, extremely tiredI'm on second day without it, it's been terrible ... it was almost impossible to keep my eyes openIn context ↗ |
Adverse events
- Caffeine and coffee“caffeine makes me anxious, I had an anxiety crisis today :(” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
caffeine makes me anxious, I had an anxiety crisis today
In context ↗