ME/CFS
Outcome unclearNeeds ongoing treatment
Low energy and weather sensitivity with ME/CFS; hot-cold showers and fasting tried
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Mar 2023
In their words
- Condition: ME/CFS
It looks like as if I have CFS and non24
In context ↗ - At worst: Mild
Now I'm trying to get back, but can't do more than once a week 8x25m.
In context ↗
Read from 13 of their posts and comments; links to the 8 this page draws on
Summary
Vale 17070, posting in r/cfs in early 2023, says they likely have CFS and non-24 sleep disorder, with low energy and weather sensitivity; they can swim only 8x25m once a week, down from three sessions weekly before Covid pool closures. Hot-cold showers three times a day, started in January 2023, made them feel better and changed their sleep, and intermittent fasting works well for them.
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What they tried
Also tried
Their words about each treatment
- swimming · Not said
Up until before Covid, I swam 3 times a week 12x25m lanes with a 2 minute break in between every lane. ... attempts so far had the usual consequences.
In context ↗ - hot/cold showers · Helped
The result so far after around a week is positive. I do feel very different. Especially my sleep became different. But I really have to do it 3 times a day. Otherwise there is no effect.
In context ↗ - Interval fasting · Helped
Interval fasting works well for me.
In context ↗ - quitting smoking · No change
As an ex-ex-ex-ex-ex-smoker I would say no, not really. Quitting is worth while only for all the other reasons.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | CFS and non-24 symptoms begin, cause unclearIt looks like as if I have CFS and non24, but my symptoms tend to varyIn context ↗ | Not stated | |
| before Covid | Covid pool closures end their swimming routineWith Covid they shut down all pools for a bit more than a year, which was quite a catastrophe for my body.In context ↗ | Mild | |
| January 2023 | Hot-cold showers three times a day make them feel betterI've started doing hot/cold showers a week a ago and it does make me feel better.In context ↗ | Mild | Cryotherapy and cold exposure |
| March 2023 | Still low energy; intermittent fasting works wellInterval fasting works well in my experience.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
That was the limit that I could go without risking complete exhaustion on the next days.
In context ↗ - Sleep problems
This often caused me to lose my frail sleep cycle, which means to wake up and go to sleep at more or less random times.
In context ↗ - Temperature regulation
I am confident the cause of my cfs is a strong meteosensitivity.
In context ↗