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Long COVID Somewhat betterIll 4 months before improving or writing

Long COVID body-wide twitching and weakness, somewhat better; reassurance and beta blocker

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
4 months
Last post
May 2025
In their words
  • Condition: Long COVIDr/covidlonghaulers In context ↗
  • Now: Somewhat betterThey have calmed down loads now. Just experiencing other issues now. Pacs and pvcs In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

They had body-wide twitching and muscle weakness and were very worried about a serious disease. Neurological exams and an EMG came back normal, and the twitching subsided greatly after they were reassured. By May 2025 the twitching had largely calmed but ectopic beats (PACs and PVCs) continued, managed with a beta blocker.

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What they tried

Their words about each treatment
  • beta blocker · Not saidI'm on beta blocker for the ectopic beats but no meds other than that. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo3.5 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
April 2025neurology exam and tests normal; twitching subsidingit's all subsided after seeing neuro and getting tests. In context ↗Mild
May 2025twitching largely calmed; ectopic beats remain on a beta blockerThe twitching has subsided greatly after I was told I was okay. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessAll over body twitching and muscle weakness. In context ↗
  • Heart symptoms & palpitationsJust experiencing other issues now. Pacs and pvcs In context ↗

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