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ME/CFS Outcome unclearIll for 7 years

ME/CFS with normal tests, tried mind-body approach and paced activity

Condition
ME/CFS
At worst
Not stated
Ill for
7 years
Last post
Sep 2022
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user describes the mind-body approach: first trusting they are not sick because tests were normal, and understanding symptoms are real but come from the brain (tension myositis syndrome). They then used meditation, journaling, somatic tracking and a strict paced increase in activity. They advise using library copies of the books rather than buying them.

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What they tried

Their words about each treatment
  • mind body approach (tension myositis syndrome) · Helped a lotThe term used is tension myositis syndrome. ... Once I fully believed in the above concepts, I could begin. In context ↗
  • meditation · HelpedA typical day would involve the following concepts: meditation, journaling (very very important), somatic tracking In context ↗
  • a very strict form of pacing · Helpeda very strict form of pacing that did not involve pushing things too far In context ↗
  • doing a bit more than I did the previous day or week · HelpedIf I could do a 1 minute workout in the living room on Tuesday, then by Friday my hope was that I could do 1 minute and 10 seconds In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—seven years of moderate ME/CFSI am OP, just re-made an account due to reddit automated shadow ban In context ↗Moderate
2022-09-11fully recovered with mind-body approach and strict pacingThe mere fact that people are recovering from ME/CFS with this method was enough for me to at least look into this approach. I am obviously very thankful I did. In context ↗RecoveredSarno / TMS / somatic tracking / JournalSpeak

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