Long COVID too ill for a shower or conversation, somewhat better after forehead Botox
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I lost my uncle last summer, and it sent me into a horrible LC crash
In context ↗ - At worst: Severe
I never imagined, having a conversation, taking a shower, would be things I was really incapable of doing
In context ↗ - Now: Somewhat better
I felt better than I did in the past 6 months ... I am not 100%
In context ↗ - Began after: COVID
it sent me into a horrible LC crash
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Oak 69485, posting in a long COVID forum, described a winter that was the sickest of their life, when a conversation or a shower were impossible; they were on about 12 medications and 60 supplements and paced carefully. After 40 units of forehead Botox on 25 February 2026 they felt better the next day than in the previous six months, though not 100%. Trazodone helped sleep but cost them the next morning.
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What they tried
What they credit
Also tried
Their words about each treatment
- Trazadone · Helped
Trazadone helps me sleep, but the next morning I pay for it for the few 3/4hrs of the day
In context ↗ - healing wave sounds on YouTube · Helped
On YouTube those healing wave sounds actually do help me a lot.
In context ↗ - pacing · Not said
resting as much as possible, pacing, and being very conscious about how I invest my energy
In context ↗ - Botox · Helped
The next day I woke up, without realizing that I felt better than I did in the past 6 months
In context ↗ - Xanax · Helped
Honestly Xanax did help during that difficult time.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| summer 2025 | horrible LC crash after uncle's deathI lost my uncle last summer, and it sent me into a horrible LC crash.In context ↗ | Not stated |
| winter 2025-26 | sickest ever; too ill to hold a conversation or take a showerI never imagined, having a conversation, taking a shower, would be things I was really incapable of doing.In context ↗ | Severe |
| 2026-02-26 | felt better the day after forehead Botox injectionsThe next day I woke up, without realizing that I felt better than I did in the past 6 monthsIn context ↗ | Moderate |
| 2026-03-01 | better than the previous six months but not fully recoveredI am not 100% but I thought I would come hereIn context ↗ | Moderate |
Adverse events
- Trazodone (Desyrel)“Trazadone helps me sleep, but the next morning I pay for it for the few 3/4hrs of the day” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Trazadone helps me sleep, but the next morning I pay for it for the few 3/4hrs of the day
In context ↗ - Post-exertional malaise
it sent me into a horrible LC crash
In context ↗ - Light & noise sensitivity
sometimes I don’t even want to listen to voices
In context ↗
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