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ME/CFS Moderate → no benefit

Long COVID that became ME/CFS, stopping studying, still not recovered

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2024
In their words
  • Condition: ME/CFSNow it has manifested as ME/CFS In context ↗
  • At worst: ModerateI had to stop studying. After my last exam I had a crash and I haven’t recovered since. In context ↗
  • Now: No benefitI haven’t recovered since In context ↗
  • Began after: COVIDI got it 4 months after the infection.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Four months after a COVID infection they collapsed suddenly while carrying crates of beer up to their flat, with a pounding heart; hospital staff called it a panic attack. Diagnosing long COVID took a long time, and trying to stay active made it worse. They had to stop studying, and after a final exam they crashed; they had not recovered by their latest post. They blamed stress and pushing too hard for turning long COVID into ME/CFS.

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What they tried

Their words about each treatment
  • trying to stay as active as possible · WorseI worsened it by trying to stay as active as possible In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
4 months after the infectionsudden onset of long COVID while carrying crates upstairs; collapsed, heart poundingMy heart didn’t stop pounding afterwards, and after a short while I just collapsed. In context ↗Not stated
after their last examcrashed after an exam and had to stop studyingAfter my last exam I had a crash and I haven’t recovered since. In context ↗Moderate
September 2024still not recovered, not studyingI had to stop studying. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseAfter my last exam I had a crash and I haven’t recovered since. In context ↗
  • Heart symptoms & palpitationsMy heart didn’t stop pounding afterwards In context ↗

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