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Long COVID Somewhat betterIll 2 years before improving or writing

Two years of long COVID, somewhat better with creatine and nervous-system work

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
2 years
Last post
Sep 2025
In their words
  • Condition: Long COVIDI’ve been going through something similar for two years. In context ↗
  • Now: Somewhat betterBut I can tell you that time makes some of it fade. What has helped me a lot is working with the nervous system. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

They described two years of illness and said they used to be very active, and that the loss was painful. Creatine was credited with a significant improvement in fatigue after several months, and nervous-system work helped a lot. Metformin and antihistamines were said to prevent further deterioration. They remained ill at the latest posts, and said time makes some of it fade.

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What they tried

Also tried

Their words about each treatment
  • creatine · HelpedI’ve been taking creatine for several months and have noticed a significant improvement in my fatigue. In context ↗
  • working with the nervous system · Helped a lotWhat has helped me a lot is working with the nervous system. In context ↗
  • time · Helpedtime makes some of it fade In context ↗
  • Metformin · HelpedMetformin and antihistamines have helped me prevent further deterioration. In context ↗

Approaches: H1 antihistamines · Brain retraining · Other drugs and medicines · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
about September 2023became ill after being very activeI’ve been going through something similar for two years. I used to be a very active person and had a very fulfilling life. In context ↗Moderate
2025-09-07significant fatigue improvement on creatineI’ve been taking creatine for several months and have noticed a significant improvement in my fatigue. In context ↗ModerateCreatine
2025-09-08time and nervous-system work helpedBut I can tell you that time makes some of it fade. What has helped me a lot is working with the nervous system. In context ↗Moderate
2025-09-08still ill; metformin and antihistamines prevented further deteriorationMetformin and antihistamines have helped me prevent further deterioration. In context ↗Moderate

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