Bed-bound at times with long COVID, now much better after L-phenylalanine and vitamin C
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
Everyone is different, and LC could be different for us
In context ↗ - At worst: Severe
debilitating fatigue, that even made me bed-bound at times
In context ↗ - Now: Much better
I truly feel that I am back from the dead, even though I cannot yet do strenuous exercises
In context ↗ - Began after: COVID
LC could be different for us
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After about 1.5 years of long COVID with debilitating fatigue that at times left them bed-bound, plus depression, weakness and faintness or dizziness on standing, they began L-phenylalanine with vitamin C, B6/P5P, a multivitamin and magnesium two months before the post. They felt back from the dead and no longer felt so dizzy on standing, though small walks were easier and strenuous exercise was still impossible.
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What they tried
What they credit
Also tried
Their words about each treatment
- L-Phenylalanine · Helped a lot
Two months ago I started supplementing with L-Phenylalanine ... I truly feel that I am back from the dead
In context ↗ - vitC · Helped
I raised my vitC and B6 intake as well (the latter in P5P form), which are cofactors for these biochemical pathways
In context ↗ - general multivitamin · Helped
Of course a general multivitamin is a must
In context ↗ - magnesium · Not said
plus magnesium, which I take before bed to avoid daytime sleepiness
In context ↗
Approaches: Amino acids and carnitine · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| about 1.5 years before September 2023 | long COVID with debilitating fatigue and other symptomsdebilitating fatigue, that even made me bed-bound at timesIn context ↗ | |
| during the 1.5 years before treatment | bed-bound at timeseven made me bed-bound at timesIn context ↗ | |
| September 2023 | felt back from the dead after supplements; small walks easier; still could not do strenuous exerciseI truly feel that I am back from the dead, even though I cannot yet do strenuous exercisesIn context ↗ | DLPA / phenylalanine |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I simply don't feel so dizzy anymore
In context ↗
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