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ME/CFS Mild → no benefitIll for 3 years

Exhausted and falling asleep in class with suspected ME/CFS, no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Jan 2024
In their words
  • Condition: ME/CFSthe doctor tells me they think I have Chronic Fatigue Syndrome In context ↗
  • At worst: MildBack in 2021 I was in my second year of college (UK) and I kept falling asleep in class, falling asleep on the bus, being constantly exhausted In context ↗
  • Now: No benefitmy symptoms have NOT improved In context ↗
  • Began after: nothing they could nameBack in 2021 I was in my second year of college (UK) and I kept falling asleep in class In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A UK college student who from 2021 was constantly exhausted and kept falling asleep in class and on the bus. A blood test found a slight vitamin D deficiency, but supplements brought no improvement and later tests were normal. In 2023 doctors raised chronic fatigue syndrome but could not diagnose her, and she was seeking a specialist clinic. By January 2024 she still could not wake to alarms and had missed class.

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What they tried

Their words about each treatment
  • vitamin D supplements · No changeso I went on vitamin D supplements. A few months pass and my symptoms have NOT improved In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y2.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2021constant exhaustion and falling asleep during collegeBack in 2021 I was in my second year of college (UK) and I kept falling asleep in class In context ↗Mild
2024-01-11still cannot wake to alarms, missed classI cannot wake up in the morning at all ... I even managed to sleep through my class today In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI cannot wake up in the morning at all ... I never hear my alarms or my phone ringing In context ↗

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