ME/CFS
Moderate → no benefitIll for 7 years
ME/CFS fatigue since puberty, few energetic hours a day; vitamin D made her more tired
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 7 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I have dealt with fatigue since puberty, and it has recently been getting worse.
In context ↗ - At worst: Moderate
I only have maybe 4-6 energetic/productive hours a day. The rest I’m tired, in bed, or taking a nap.
In context ↗ - Now: No benefit
it has recently been getting worse.
In context ↗ - Began after: nothing they could name
I have dealt with fatigue since puberty
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 19-year-old woman has had fatigue since puberty, and says it has recently been getting worse. She has only about four to six energetic or productive hours a day and spends the rest tired, in bed or napping, and extra sleep does not help. Told she was slightly deficient in vitamin D, she has been taking 5,000 IU daily and feels it is making her more tired instead of better.
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What they tried
Also tried
Their words about each treatment
- Vitamin D · Worse
I’ve been taking 5,000 iu Vitamin D a day, approved by my PCP and I feel like it is making me way more tired instead of the opposite.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| puberty | fatigue began at pubertyI have dealt with fatigue since pubertyIn context ↗ | Not stated |
| recently | fatigue getting worseand it has recently been getting worseIn context ↗ | Moderate |
| 2026-06-09 | four to six productive hours a day, rest of the day tired or in bedI only have maybe 4-6 energetic/productive hours a day. The rest I’m tired, in bed, or taking a nap.In context ↗ | Moderate |
Adverse events
- Vitamin D and sun exposure“I’ve been taking 5,000 iu Vitamin D a day, approved by my PCP and I feel like it is making me way more tired instead of the opposite.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Sleep problems
The amount of sleep I get doesn’t change this, nor my sleeping/waking times.
In context ↗